- Genetics and Rare Conditions Site, Medical Genetics, University of Kansas Medical Center
(University of Kansas Medical Center)
- NORD: National Organization for Rare Disorders
(National Organization for Rare Disorders)
- This web site provides a database of abstracts describing rare disorders. More extensive reports and articles can be ordered online for a fee. Also provides news, a database of organizations and and orphan drug list.
- Office of Rare Diseases, National Institutes of Health
(National Institutes of Health)
- This site provides information about rare diseases and orphan drugs.
- This site is a database of rare tumours.