Genetic and Rare Conditions

Genetic & Rare Conditions
support groups & information compiled by the University of Kansas Medical Center
Genetics Home Reference
from NLM: "consumer information about genetic conditions and the genes responsible for those conditions"
NORD: National Organization for Rare Disorders
(National Organization for Rare Disorders)
This web site provides a database of abstracts describing rare disorders. More extensive reports and articles can be ordered online for a fee. Also provides news, a database of organizations and and orphan drug list.
Office of Rare Diseases, National Institutes of Health
(National Institutes of Health)
This site provides information about rare diseases and orphan drugs.
Specific Genetic Disorders
from the National Human Genome Research Institute